The 20 Best Porencephaly Doctors Near Me in San Francisco, CA

Find the Top Porencephaly Experts and Specialists

The 20 Best Porencephaly Doctors near San Francisco, CA

Last Updated: 02/22/2026

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MediFind found 9 doctor with experience in Porencephaly near San Francisco, CA. Of these, 8 are Experienced and 1 are Advanced.

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9 providers found
    Philip V. Theodosopoulos
    Advanced in Porencephaly
    Advanced in Porencephaly

    Adult Neurofibromatosis Type 1 (NF1) And Schwannomatosis Clinic

    400 Parnassus Ave., Eighth Floor, 
    San Francisco, CA 
     (2.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Philip Theodosopoulos is director of the Skull Base Tumor Program and vice chair of neurological surgery at UCSF. Before joining UCSF, he served as director of skull base surgery at the University of Cincinnati for 10 years. Theodosopoulos cares primarily for patients with skull base lesions, particularly malignancies and acoustic neuromas – noncancerous tumors that grow on nerves near the ear. His expertise includes endoscopic treatment of pituitary adenomas and chordomas as well as minimally invasive approaches to the skull base. Theodosopoulos has been a pioneer in the development of new surgical approaches to the skull base. He served as co-principal investigator for the largest prospective multicenter trial of surgical treatment for acoustic neuromas, and he currently serves on the Acoustic Neuroma Association's medical advisory board. He also has extensive expertise in research on patient outcomes. As a resident at UCSF, he completed the full curriculum for outcomes research and clinical epidemiology, and he continues to be involved in outcomes research at both the local and national levels. Theodosopoulos earned his undergraduate degree at the Massachusetts Institute of Technology and completed medical school at Stanford University. He completed his neurosurgical training at UCSF, followed by a fellowship in cerebrovascular and skull base surgery at the Brigham and Women's Hospital, an affiliate of Harvard Medical School. Theodosopoulos has been on the faculty for more than 50 national and international surgical courses. He serves on the education committee for the Congress of Neurological Surgeons. He serves as residency program director for neurological surgery at UCSF. Dr. Theodosopoulos is rated as an Advanced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Schwannoma, Acoustic Neuroma, Meningioma, Endoscopic Transnasal Transsphenoidal Surgery, and Balloon Sinuplasty.

    Experienced in Porencephaly
    Neuroradiology
    Experienced in Porencephaly
    Neuroradiology

    University Of California San Francisco

    505 Parnassus Ave, 
    San Francisco, CA 
     (2.3 miles away)
    Languages Spoken:
    English

    Orit Glenn is a Neuroradiologist in San Francisco, California. Dr. Glenn is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Stroke, Relapsing Multiple Sclerosis (RMS), Cerebellar Degeneration, and Primary Lymphoma of the Brain.

    Experienced in Porencephaly
    Neuroradiology
    Experienced in Porencephaly
    Neuroradiology

    University Of California San Francisco

    505 Parnassus Ave, 
    San Francisco, CA 
     (2.3 miles away)
    Languages Spoken:
    English

    Jeffrey Huang is a Neuroradiologist in San Francisco, California. Dr. Huang is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Prolactinoma, Cerebral Arteriovenous Malformation, CAPOS Syndrome, and Meningioma.

    Learn about our expert tiers
    Gina T. Moreno
    Experienced in Porencephaly
    Internal Medicine | Bariatric Medicine
    Experienced in Porencephaly
    Internal Medicine | Bariatric Medicine

    General Internal Medicine At Mount Zion

    1545 Divisadero St., First And Second Floors, 
    San Francisco, CA 
     (1.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Gina Moreno is a primary care provider, practicing in Internal Medicine and Bariatric Medicine in San Francisco, California. Dr. Moreno is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Obesity, Obesity in Children, Neurosarcoidosis, and Sarcoidosis. Dr. Moreno is currently accepting new patients.

    Manish Aghi
    Experienced in Porencephaly
    Neurosurgery
    Experienced in Porencephaly
    Neurosurgery

    Brain Tumor Center

    400 Parnassus Ave., Eighth Floor, 
    San Francisco, CA 
     (2.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Dr. Manish Aghi is a neurosurgeon specializing in brain tumors at UCSF Medical Center. He cares for adult patients with a wide range of conditions, including astrocytomas and anaplastic astrocytomas, oligodendrogliomas, glioblastomas, meningiomas and pituitary adenomas. As principal investigator at the UCSF Brain Tumor Research Center, his interests include glioblastoma angiogenesis, mechanisms of glioblastoma resistance to anti-angiogenic therapy and experimental glioblastoma therapies such as cancer-killing viruses. Aghi earned his medical degree and a doctoral degree in neurosciences from Harvard Medical School. He completed a residency in neurosurgery at Massachusetts General Hospital. He is a member of the Society for Neuro-Oncology, American Association of Neurological Surgeons, Congress of Neurological Surgeons and Pituitary Network Association. Among his honors are the Preuss and Mahaley awards from the American Association of Neurological Surgeons, and the Ronald L. Bittner Award, Synthes Skull Base Award and Integra Foundation Award from the Congress of Neurological Surgeons. Dr. Aghi is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Pituitary Tumor, Hypothalamic Tumor, Prolactinoma, Balloon Sinuplasty, and Awake Craniotomy.

    Experienced in Porencephaly
    Experienced in Porencephaly

    Sutter Van Ness Campus Medical Office Building

    1100 Van Ness Ave, 
    San Francisco, CA 
     (0.8 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Dimitrios Giannakidis is a Neurologist in San Francisco, California. Dr. Giannakidis is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Brain Aneurysm, Stroke, Vertebral Artery Dissection, Gallbladder Removal, and Endoscopy.

    Experienced in Porencephaly
    Experienced in Porencephaly

    Arnold Greenberg Medical Corp.

    2299 Post St Ste 206, 
    San Francisco, CA 
     (1.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Arnold Greenberg is a Neurologist in San Francisco, California. Dr. Greenberg is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Pseudobulbar Affect, Benign Paroxysmal Positional Vertigo, Dysembryoplastic Neuroepithelial Tumors (DNET), and Brain Stem Cancer.

    Experienced in Porencephaly
    Internal Medicine
    Experienced in Porencephaly
    Internal Medicine

    Wellness Care Medical Group A Professional Corp.

    416 16th Ave, 
    San Francisco, CA 
     (3.1 miles away)
    Languages Spoken:
    English

    Lee Chan is a primary care provider, practicing in Internal Medicine in San Francisco, California. Dr. Chan is rated as an Experienced provider by MediFind in the treatment of Porencephaly. His top areas of expertise are Hypertension, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Gout.

    Experienced in Porencephaly
    Experienced in Porencephaly

    UCSF Benioff Children's Hospital Oakland

    747 52nd St, 
    Oakland, CA 
     (9.4 miles away)
    Languages Spoken:
    English

    Wendy Patton is a Radiologist in Oakland, California. Dr. Patton is rated as an Experienced provider by MediFind in the treatment of Porencephaly. Her top areas of expertise are Scrotal Swelling, Aseptic and Alopecic Nodules of Scalp (AANS), Progressive Familial Intrahepatic Cholestasis Type 3, and Progressive Familial Intrahepatic Cholestasis Type 1.

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    Last Updated: 02/22/2026

    What is the definition of Porencephaly?

    Porencephaly is a rare condition that affects the central nervous system. People with Porencephaly develop fluid-filled cysts or cavities in the brain either before or shortly after birth. The severity of the condition and the associated signs and symptoms vary significantly based on the size, location, and number of cysts. Common features include developmental delay, reduced muscle tone (hypotonia), seizures, macrocephaly (unusually large head size), spastic hemiplegia, speech problems, delayed growth, and intellectual disability. Porencephaly is usually the result of damage from infection or stroke after birth. In these cases, the condition occurs sporadically in people with no family history of the condition. There is an inherited form of the condition called familial Porencephaly, which is caused by changes in the COL4A1 or COL4A2 genes and is inherited in an autosomal dominant manner.

    When should I see a Porencephaly doctor near San Francisco, CA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Porencephaly doctor near San Francisco, CA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Porencephaly doctors near San Francisco, CA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Porencephaly doctors near San Francisco, CA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Porencephaly doctor near San Francisco, CA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Porencephaly doctor search results page. 

    Why is it important to get a second opinion from a different Porencephaly doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Porencephaly doctor near San Francisco, CA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Porencephaly doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Porencephaly doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Porencephaly doctors near San Francisco, CA?

    Look for the filter feature on the left side of the Porencephaly doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Porencephaly doctor that offers video calls?

    Look for the filter feature on the left-side of the Porencephaly doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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